Showing posts with label Lyme Disease Association. Show all posts
Showing posts with label Lyme Disease Association. Show all posts

Tuesday, June 24, 2014

Lyme Disease Foundation

Lyme Disease Foundation
Lyme disease foundation is one of the major trusts which are constantly trying to find solutions regarding tick bite disorders. LDF is very committed towards their service and programs, the working procedure contain four major pillars government, business, patients and medical community. These are four pillars by which PDF tries to fight back tick related disorders. PDF is the only foundation in tick related problems and they are having strong links in international scientific society. PDF is a non profitable foundation and it satisfies the international federal standards. LDF is having research teams, media outreach and different educational programs. LDF headquarters are having employees who are completely professional with a modern library which contains more than 100,000 databases of tick related cases. Among the total donation 87% goes to the different tick related programs and 13% goes to those who are supporting the programs.



LDF was founded by Thomas E and Karen Vanderhoof in 1988. They believed that this Lyme disease is very serious and every one in the world should be aware of this disease. Their combined efforts are very remarkable as the awareness rates increased from 0% to 88% within 2 years. Tick related disorders are cat scratch disease, babesiosis, Colorado thick fever, ehrlichiosis, master's disease, Lyme disease, powassan encephalitis, query fever, rocky mountain fever, relaxing fever, tularemia and tick paralysis.



More than $500,000 is funded in more than 30 research programs. Each and every program includes well trained research team and they are located around the world. James E checks the overseas program personally 2 times in a year.



Consistent medical conferences are held to make better and improved approach towards the Lyme related problems. Every year these conferences are broadcasted and discussions are also carried out to make the public aware of different research and programs related to the disease. There are more than 17 international conferences are held till now. Conference summaries are posted on web and they are viewed by more than 100,000 users in net. These constant efforts from LDF have created vast awareness among the public.



LDF has won several awards in this field; they were awarded for their television shows, educational activities and for websites which contain their program and research details.



JSTD is the first journal published by LDF and these journals were distributed all over the country libraries and medical centers for creating awareness. These journals contained medical discussions and latest research details about tick bite disorders.






Lyme Disease Association

Lyme Disease Association
Basically, Lyme Disease Association is an all-volunteer non profit and a national association that dedicates itself in prevention, raising cash for the research and as well patients' support and also education on Lyme disease.



In other aspects, it is a provider of 98% of raised funds to programs. These funds have funded dozens of research projects coast -coast through various research institutions.



The Lyme Disease Association provides medical conferences that are fully accredited. The LDA's conference in the year 2000 held in the university of Philadelphia was the first ever to be devoted to problems that children with lime diseases are facing. The LDA carries out funds research nationally and then the research published in the peer review.



Those people who don't have insurance cover for Lyme disease especially children, are provided with the money in form of lymeAid4kids.



LDA in conjunction with internationally acclaimed author Amy tan support the fund. And so far, LDA has awarded grants to date which amounts to $36,000. These grants usually help most of the affected children in 12 states and Canada. The LymeAid4kids was initiated and as much as it does provide literature, information line and doctor referrals for free, it is boosted by the fact that it has affiliates, chapters and as well a coast to coast working relationship with its customers. These affiliations are mainly to coordinate efforts against lyme disease and the LDA together with its affiliates have managed to raise about $5million to assist in combating Lyme diseases.



The unfortunate side of it is that much more funding is required for Lyme disease education and research. The LDA is also in dire need of facilities that will make it concentrate efforts in combating the Lyme Disease Enigma. This has led the LDA together with its affiliate that includes the Time for Lyme (TFL) to start the process of creating an endowed Lyme disease research center at Columbia University.



In short Lyme is a great company with great ambitions. This is seen from the fact that it has in the past funded he pilot study that was fact finding on the effects of long term Lyme disease treatment is by the use of the state-of the art brain imaging. Benefits have already been seen in this long term ambitious plan by the LDA. Some of the projects that have shown measurable progress are funded research on genome work which was initially supported by LDA.